

The myRARE mission
Welcome to the myRARE community!


EVKEEZA® (evinacumab-dgnb)
To get started with the myRARE for EVKEEZA Patient Support Program, please click below
For information and resources about the myRARE for EVKEEZA Patient Support Program, please click below
VEOPOZ® (pozelimab-bbfg)
If you are interested in enrolling in the myRARE for VEOPOZ Patient Support Program, please call myRARE at:
1-833-4my-RARE (1-833-469-7273), Option 1
If you are interested in enrolling in the myRARE for VEOPOZ Patient Support Program, please call myRARE at:
1-833-4my-RARE (1-833-469-7273), Option 1
For information and resources about the myRARE for VEOPOZ Patient Support Program, please click below
Please see Full Prescribing Information, including BOXED WARNING, for VEOPOZ.
myRARE Patient Navigators
Your Patient Navigator will be your primary point of contact for the myRARE Patient Support Program and is a trusted source of support who can work closely with you. Your Patient Navigator can:
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Answer your questions about treatment logistics
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Navigate and understand insurance coverage
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Assist with any logistical challenges related to your treatment
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Equip you with information and resources
Once you have enrolled in myRARE, your Patient Navigator will call you to welcome you to the program.
While your Patient Navigator is your contact for myRARE support, please remember that your doctor is your go-to for information about your condition and treatment.
Meet the myRARE Patient Navigators

Desarie (Des)
Patient Navigator Lead

Arleny

Cindy

Patrice

Catherine
myRARE Patient Support Managers
A myRARE Patient Support Manager will review your health insurance coverage for your medication and help your doctor’s office navigate the health insurance approval process. Patient Support Managers also help determine if you are eligible for the myRARE financial support programs.
Meet the myRARE Patient Support Managers

Beth

Diana

Nissa

Teresa

Morgan

Madison

Jessica
Contact us
myRARE is here to support you throughout your treatment journey. If you have any questions or for additional assistance, please contact myRARE at 1-833-4my-RARE (1-833-469-7273) Option 1, Monday–Friday, 9 AM–9 PM Eastern time.