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The myRARE mission

Welcome to the myRARE community!

myRARE for
EVKEEZA® (evinacumab-dgnb)

To get started with the myRARE for EVKEEZA Patient Support Program, please click below

ENROLL

For information and resources about the myRARE for EVKEEZA Patient Support Program, please click below

myRARE for EVKEEZA resources
myRARE for
VEOPOZ® (pozelimab-bbfg)

If you are interested in enrolling in the myRARE for VEOPOZ Patient Support Program, please call myRARE at: 
1-833-4my-RARE (1-833-469-7273), Option 1 

If you are interested in enrolling in the myRARE for VEOPOZ Patient Support Program, please call myRARE at: 
1-833-4my-RARE (1-833-469-7273), Option 1 

Call: 1-833-469-7273

For information and resources about the myRARE for VEOPOZ Patient Support Program, please click below

myRARE for VEOPOZ resources

Please see Full Prescribing Information, including BOXED WARNING, for VEOPOZ.

Meet the myRARE team!

myRARE Patient Navigators

Your Patient Navigator will be your primary point of contact for the myRARE Patient Support Program and is a trusted source of support who can work closely with you. Your Patient Navigator can:

  • Answer your questions about treatment logistics
  • Navigate and understand insurance coverage
  • Assist with any logistical challenges related to your treatment
  • Equip you with information and resources

    Once you have enrolled in myRARE, your Patient Navigator will call you to welcome you to the program.

    While your Patient Navigator is your contact for myRARE support, please remember that your doctor is your go-to for information about your condition and treatment.

    Meet the myRARE Patient Navigators

    Desarie (Des)
    Arizona

    Patient Navigator Lead

    Arleny
    Florida
    Cindy
    Oklahoma
    Patrice
    Florida
    Catherine
    Washington

    myRARE Patient Support Managers

    A myRARE Patient Support Manager will review your health insurance coverage for your medication and help your doctor’s office navigate the health insurance approval process. Patient Support Managers also help determine if you are eligible for the myRARE financial support programs.

    Meet the myRARE Patient Support Managers

    Beth
    Illinois
    Diana
    Arkansas
    Nissa
    Arkansas
    Teresa
    Missouri
    Morgan
    Illinois
    Madison
    Arkansas
    Jessica
    Texas

    Contact us

    myRARE is here to support you throughout your treatment journey. If you have any questions or for additional assistance, please contact myRARE at 1-833-4my-RARE (1-833-469-7273) Option 1, Monday–Friday, 9 AM–9 PM Eastern time.